Thursday, July 28, 2011

Recovery

Kara is doing well as she recovers from the g-tube procedure. She is enjoying chewing on all the new toys at her disposal, her drain tube, her heart monitor cords, and other tubes that are taped to her. Kara is scheduled to come home tomorrow, Friday.

She has started to receive food at a measured pace per doctor's orders. They want to make sure she can handle food before she is allowed to come home. Her last feed she hungrily took 95 mls by mouth! Her normal feed volume is 120 mls.

Meg is doing well but tired. Kara has not been sleeping as soundly and their 'room mate' has had a hard time sleeping at night. Please pray for Meg that she would get rest and rely on the Lord for strength.

Connor and Katie are doing better, Katie more so. Connor is just now gaining his energy back.

Please continue to pray for Kara's recovery. Also pray for Meg and I that we would have patience and strength to care for all the kids this weekend.

Wednesday, July 27, 2011

@ Children's (again =)

Meg & Kara are at Children's for Kara's g-tube placement. Hooray! Kara's surgery was postponed for a few hours (procedure before her was more complicated than anticipated). God was so gracious in allowing Kara to not be too fussy despite of a very empty tummy!

We had planned for Jeremy to also be here, and for Connor & Katie to spend the day at some friends'. But Connor & Katie came down with fevers, etc. yesterday. Thankfully they seem to be doing better today, so Jeremy is hoping to attend a morning meeting for work tomorrow and then possibly bring the kiddos to the hospital to see Kara.

We are thankful to feel "at home" here, but I (Meg) am a bit anxious about Kara's recovery. This time I know my little girl, and I will know when she is not herself. Thank you for the prayers. Please pray for our continued struggle for contement as God leads us in HIS ways (which are higher than our ways), and our decisions about logistics over the next 2 days.

Saturday, July 23, 2011

Going, going, going...

We have been going, going, going this week! We just hosted a garage sale at our home today (hooray, it went well and was so good to clear out things!)

Kara's tube will be going, going, going bye bye in a week and a half. She has her G-tube surgery scheduled for next Wed. We have to wait for it to heal (use NG in the meanwhile), and then NO MORE TUBE IN THE NOSE! Which is really good. She has decided that she doesn't like it. She is genius at pulling off her "sock-hands" and then attacking the tube or the tape. And we have to re-tape or re-tube daily (sometimes more).

Tomorrow we are going, going, going to have Putman family fun day! Hooray. Our kids definitely deserve it after their patience during the garage sale today. They did great. We have great weather, so it's going to be a trip to the Spray Park after church. What a treat.

Some pictures from family being in town. Yes, that waterfall is within 15 minutes of our home (come visit!!) Wanted to upload more, but it's taking too long and bed is calling!




Monday, July 18, 2011

Kara Laugh

We have had family in town (hooray!) this last weekend so I'll have to catch up on blogging in the next few days, but here's a video I couldn't resist sharing!!

Tuesday, July 12, 2011

Where to begin?

It has been a full last however many days since I've posted! I was thinking about retelling the drama of breakfast this morning (let's just say I keep pushing the limit of multitasking) - I'll just leave a picture of all the items needed for today's breakfast.


We went to "Day out with Thomas" this last Saturday. My parents take us to this every year, and the big kids look forward to it. They know that it's summer "when Thomas comes." Thomas takes us on a train ride from the town of Snoqualmie to Snoqualmie Falls and then back again. This year the kids lasted a bit longer (except Kara, but she can still sleep fairly easily) so we were able to do more activities. We did the train ride, the bouncy house, a small little locomotive ride, temporary tattoos, story time, watching model trains (real steam!), and train tables. A quick spin through the gift shop, and we called it a day. Bonus?? We get to go again with Jeremy's family this weekend. We can't wait!




And this is a pic of the 2nd time I have given Kara a bottle at bedtime where she has eaten enough to be happy and drowsy. What bliss!

Thursday, July 7, 2011

Kara Beara!

Well, our sweet Kara Beara is growing. She grabs here little carseat toys with both hands and pulls on them with so much coordination! I just peeked in on her and she had pulled the "lovey" in her crib up to her face to cozy with for bed (did that earlier today too... might be getting attached, we'll see!)

She also did another amazing thing today. This is the 3rd time in her life she has eaten a full bottle. What a joy it was to have her in my arms, eating while dozing off to sleep. It is a huge joy for her to do something so "normal".

We had a follow-up with her surgeon today. He is pleased with her progress, but thinks a G-tube (straight into her tummy vs. through her nose) is a good plan for Kara. We are scheduled for surgery on 7/27. He will bring her tummy up to the skin and attach to put the tube in. The surgery itself is only approx 1 hr, but they will monitor her and we will have a 2 night hospital stay. It seems like another life that we were there every day for a month. Such an example of God giving you the grace when you need it. Today it felt like a huge ordeal (and kind of was... 5 hr process) to get to 1 little appointment.

So, we look forward. Mostly to God's mercies that are new every morning and really mostly to our heavenly home where, Lord willing, we are storing treasure (pardon my terrible grammar early in that sentence!). As for the next month, we look forward to continued work for Jeremy (in the middle of a big project), Bible study for Meg (2 Thessalonians), Pottying for both bigger boogies, 2 "days out with Thomas" - railroad rides in Snoqualmie, celebrating Katie's 2nd birthday party, family coming into town (we can't wait!), and surgery.

And now? Time for bed! We have a full day tomorrow.

Monday, July 4, 2011

4th of July

We had a wonderful 4th of July. Great weather, good picnic, delicious barbeque, and good company. It is becoming a tradition to spend the 4th of July with our friends, the Wall family. What a blessing. This year we even did some sparklers and worms. Some pics below.

Kara is on day 4 of a 7 day "wean." For days 1-3 we gave her limited amounts of milk through her NG tube and some water (to prevent dehydration) through the tube. Hoping to encourage her hunger levels and increase her desire to eat more. A few weeks ago, her daily oral intake was about 120 mL per day. Yesterday was in the 300s and Saturday was in the 400s. Way to go, Kara! Her total volume is 770mL per day (and increasing) so we're not there yet, but her progress is encouraging. This process is slightly difficult on me because every time she cries or is at all fussy, I think "is she hungry?" and try to get her to eat. This leads to snacking and a frustrated Mommy and baby. I need to just relax! She is also getting to the age where she a) cannot sleep anywhere (the last 2 days have been tough because we have been on the go) and b) she has a fussy voice when she wants company. If she is alone in a room for too long, she will start to protest. We love our Kara-beara.

We meet with her surgeon this Thursday, so it will be interesting to see what new information, strategies, etc. come from that.

In other news, Katie is potty-trained (because life was just getting a bit too calm for a day or so!!). We are astounded at how well she is doing. Hooray for Katie! And Hooray for less diaper laundry for Mommy. Thank you, God, for your specific grace in this area!





Kiddos

We can't resist taking pictures of our kids! Connor wanted to cuddle Kara (and asked me to take a picture), and Katie loves to give Connor big hugs, and Kara? Well, she's just cute!