Tuesday, August 2, 2011

One More Day!!


We can't wait. One more day of the NG tube. She has been using it until her surgery follow up to let her G-tube hole (stoma) heal. She continues to "claw" at her tape and tube. She is also antsy to have it gone. It is looking red around the incision site, and we're hoping that is irritation. It could be from irritation or infection. So we've rigged up a gauze/tegaderm/tape combination to try to keep it off her skin and keep it still.

She is eating well. She was not allowed to eat for approx 32 hrs, so I was SO happy to give her a tiny 1 oz bottle of pedialyte. Just felt like I was actually doing something for my baby. Then we switched to 1 oz milk (3 hrs later) and increased feeds slowly to make sure her tummy could tolerate it. Once we "passed" that test at 9 p.m., we were discharged from the hospital at 11p Thursday night. (I thought that was preferable to another night of being woken up every hour by the baby next door!) Jeremy let me sleep in Fri/Sat which was awesome.

The time at Children's was hard, but God did give some opportunities to give Him credit for His plans in Kara's life, as well as the grace He's given us. I also had some chances to have compassion and look a bit more outward than inward as I heard of very challenging medical situations. We are truly fearfully and wonderfully made, and when one little piece isn't formed just "right" (although obviously in God's plan it is right)... disaster ensues!

Here are some pictures:
The kids love their goggles (wore them to the airport yesterday to pick up Papa and Mimi)

Just happy to be in the room with someone!


Success! Got Kara to go back asleep.

Listening to the "ocean"
Both kids love to have Kara on their lap... look!
Houdini in action, the tube is out! Red alert!

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