It's been a while since an update. We've had internet down and it's been busier at the hospital (a good busy). Let's see, my thoughts are a bit random, so here's an update in bullet format.
*Kara is OFF morphine =)
*Kara had her PICC (long term IV) line removed so she now has a "bare" right hand =)
*OT/PT thinks it may take Kara weeks (as opposed to days or a week) to get to a bottle, so we discussed our discharge/transfer options yesterday. Looks like we may stay another week and then discharge with "home hospital" support and feeding support from an Issaquah entity.
*Our nurse yesterday said we had the BEST surgeons (she thinks 3 are the best and 2 are taking care of Kara). She wants her Mom to be operated on by these surgeons instead of adult surgeons. Thanks, God! Again, we have gotten the BEST healthcare this whole process.
*I have finally figured the traffic out. Leave at 6:45 or 8:30 (but not in between!)
*Yesterday at noon, Kara did an excellent job on her "binkie trainer". So to get her sucking/swallowing, we are doing 2 things
1) finger/pacifier in mouth, dropping drops on top and letting them roll into her mouth so she has to swallow tiny amounts at a time and gets used to sucking with swallowing
2) binkie trainer which is a pacifier with a tiny tube going through the hole, connected with a syringe filled with milk. If she sucks well, she will get small amounts of milk each suck. I can "hold back" the syringe if it's too much for her to swallow, or advance a little milk from the syringe to get her started. Yesterday she powered through 2, 5mL syringes without choking or coughing and wanted more (but we are starting slowly). Hooray! Good job, Kara.
We are thankful for the support of our family and friends. Connor & Katie continue to do well (said 'goodbye' to both of us this morning with smiles). God has been giving them lots of grace, no wonder when we know how many of you are praying for us. Thank you.
Sorry no pictures, apparently I can't use the USB ports at the Chidlren's computer and our internet has been down at home.
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