Kara Update - Sunday

Boy, do I love the Lord's Day. We were blessed with a wonderful day today. I'll summarize bullet-style.

*Waffles for breakfast
*Church
*Lunch (provided by Mindy - delicious!) at Children's
*Taking turns holding Kara, kissing Kara, wheeling Connor & Katie around in a Red Wagon (they are scarce but one was at the entrance when we arrived at the hospital)
*Kara doing some active sucking on my finger (hooray! She's learning!)
*Kara fussing toward the end of our visit, and we actually knew what was wrong and that this was not normal and asked the nurse if it was time for Tylenol (and it was!!). Can words even express the joy of feeling like we know our baby (and not just this baby, but for any baby, right? Even a newborn that's been at home that you can finally distinguish one cry from another).

As far as medical updates. Kara was lowered to 5 mccg (from 10) of morphine yesterday. She had one bolus yesterday evening at 5 p.m. and nothing since then and is doing great. She's so close to being weaned from morphine! We had thought that Kara would need to be bottle feeding before discharge. Apparently that is not a "must" but we could be sent home on a feeding tube. This just makes us rearrange our thinking. I (Meg) am planning to sit in on rounds and strongly request that we be moved back to Evergreen for more support with feeding and possibly Evergreen would not discharge until bottle feeding is mastered (but that is an unknown). In any case, it will be nice to be in on "the plan" because we are hearing different things from different sources.